Spring Break continues to be a suck-fest.
Appointments that bring the same sucky results. Appointments that end with the urologist telling you he really doesn't know what to do about the whole continuing reflux thing other than to try taking Bean off of her daily antibiotic to see if the reflux will cause a kidney infection.
**Let me jump in here and tell you that the ONLY time Bean has had a kidney infection is the couple of times we've tried taking her off her daily antibiotic. And these aren't 'easy' UTIs. NOPE. They are raging (pediatrician's words when Bean had an infection when we were in Atlanta when my dad died ~ fun times!) Kidney Infections that come with fevers in the 103 to 105.7 (yep! love that number!) range for at least three days, with at least two injections of broad spectrum antibiotics that HURT. She doesn't get the 'normal' symptoms of painful urination or aches in her sides. Nope, just a massive fever that comes out of no where.
Not really the first course of action on my list, taking her off antibiotics, I can tell you!
Granted, we won't know if she'll have a kidney infection unless we take her off the antibiotic. But, being the realist that I am, and history being what it is, I'm pretty sure it's gonna happen!
So, we've decided that we'll be waiting until school is out to try this wicked experiment of taking her off her daily protective antibiotic. Not chancing her having to miss a week or more of school to satisfy the urologist's curiosity about whether the reflux 'matters or not' any more. Plus, I have NO IDEA what kind of havoc an infection like this could wreak on D...suckfestpalooza, for sure!!
And to keep with the suckfest theme, here's a gut level honest look at Bean's day yesterday:
Yeah, I'm thinking that leg site isn't working so great. Plus, Wilma (Bean's dexcom CGM) hasn't been providing the best results for the past couple of days. That's a bit of comfort, knowing she hasn't been quite that high or spiking quite that steeply, but it still isn't pretty if you were to graph her actual BG readings.
The day before looked kinda like that, too. And after two days of seeing sucky numbers that don't want to budge and spiking BGs from meals that shouldn't affect her quite that badly, add to that wonderful test results, I'm feeling kinda beat up. I've eaten too much chocolate cake. Had way too many Girl Scout Cookies. UGH!
I know, 'this, too, shall pass' but right now, in the middle of it, it SUCKS. I'm ready for some more normal stuff.
OH, and to top it all off? We are within just a couple of inches of snow to break the over 50 year old record. Last count I can find, we've had 129.4 inches of snow. That's a dang lot of snow! It snowed most of yesterday, and the forecast is calling for more over the next few days. Just really, really hoping we don't have a St Patrick's Day dump like we did 10 or so years ago when we got 18 inches! UGH, UGH, UGH!!
Enough whining for now...there's laundry and dishes to do, oh joy!
And I should probably go see why the girls are playing nicely! Not always a good sign!!! ;)
Sure hoping for a more 'upbeat' post soon!!!