I don't mind talking about Bean's Diabetes, really I don't.
When people ask me questions and I can help them understand a little bit better what she deals with day in and day out, it's a good thing.
Sure, there are times I feel like a rambling idiot savant spouting out BG numbers and ratios and correction factors and carb counts and, and, and....
But when the 'stupid' comments start, I really want to tell them to shut the hell up!
For example....while in Georgia, I was asked by lots of people about Bean.
One conversation included the other person telling me about their sibling who had a T1 child (adult now) who had stopped taking care of himself and was now blind and had a leg amputated. Say What?!?
Other conversations included comments like "are her numbers in control now that she's using a pump?" and "since she got it so young, she'll be able to grow out of it, right?" and "my daughter has such and such, so I totally understand what you are going through" and "it would be so hard for her to be at this party and not eat any of the yummy desserts."
Thankfully I only have to see these people from time to time...and some rarely or never at all (seat mates on the plane)...which makes it a bit better, but still, why do people say crap like that?
The conversations that really get under my skin are the ones with people I have to see on a regular basis. Ones that have been in our lives for the past year that we have been 'doing' D.
Ones that have heard me explain things several times.
Ones that, by this point, should have at least enough of an understanding that they don't keep making the same stupid comments!
We were at a party this past Sunday. It was fun. We hung out with friends; the girls played with friends. I wasn't expecting to be there for as long as we were, but that was OK. We had just eaten lunch so we were 'good' there and with all the food there, I was able to keep the girls satisfied.
Ubergeek checked on Bean and had her test....460, lovely! Why can our carb count for Subway be spot on some days and so totally off on others?!?!
He comes out to fill me in and I have to hear comments like "oh, she's still having trouble with her blood sugar going high?"
About an hour later he checks on her again and she's at 236...nicely coming down, but on fast side. (Can't ever tell with her if she's going to run around like a banshee or spend hours 'dressing up' in her friend's clothes!).
Forty minutes later, she comes outside with her PDM in hand and shows Ubergeek the number...he happened to be sitting closer to the door she came out of. 62, to which he says 'juice box' to which she replies, 'um, already did.' Love it! Didn't love the 0.85u still on board, so she ate several snacks from her kit...none of the 'party food' interested her...other than the cake and I didn't want to 'go there' with her at that point.
The rest of the evening was 'fine' BG wise, but the comments continued.
"Shouldn't her pump help her from going low like that?"
"My kid is eating so much today, at least we don't have to worry about her going high!" This from a friend who's daughter has been having some hypo episodes, but honestly seems to not understand what's going on or how to manage it.
I honestly don't know if I want to sit them all down for a couple of hours and go over all the D stuff so they might understand it better (thus minimizing the comments) or if I'd rather them just not talk to me about D at all!
Maybe what I really want is a mute button for those times when people say stupid stuff. I don't want to hear it; it's not helpful information; it makes me cringe while the words are coming out of their mouths and for days (obviously!) after when I replay them in my head.
Or maybe I need to stop caring about the potential of hurting their feelings and just tell them how wrong they are or how it's not helpful at all to hear about so and so who went blind and lay it out for them in plain English and move on.
There's enough wrong and hurtful information out there and it's not really their fault they don't know better, but if I can set them straight, maybe I should!